Tag Archives: independence

Judas Priest! How we won at the casino.

And to think we didn’t really want to go to the concert in the first place.

Even though our friend Steve Jessmore texted us to see if we were interested in going, and Jennifer’s brother, Steve, also called to invite us, we weren’t sold initially.

Pre-concert prep with the Steves. Absent from our party: Rain and hot July temperatures.

Not that we were anti-Judas Priest or Deep Purple. We mean, who doesn’t like to have a good time with friends and classic hits like “Turbo Lover,” “Breaking The Law” and “Smoke on the Water”?

Plus, it was happening less than 10 minutes from our house at the Soaring Eagle Casino and Resort.

But the realities of living with Multiple Sclerosis initially kept us from wholeheartedly embracing the opportunity when it was first presented. At first we saw all of the worsts that could happen:

  • It was an outdoor concert, and it’s the middle of summer. Excessive heat and MS don’t mix!
  • There’d be no way for us and the two Steves (our friend and Jennifer’s brother) to sit together. That’s the way it goes sometimes when you need a handicapped-accessible seat and are allowed only one companion seat.
  • Again, it was an outdoor concert, and it was a long way to the restrooms/Porta-Potties. Distance and MS bladders are the top two ingredients in the recipe for an MS disaster.
  • And finally, it was an outdoor concert, and there always is the potential for rain and thunderstorms. Water and Jennifer’s electric wheelchair are the top two ingredients in another recipe for an MS disaster.

Excuses, excuses, excuses.

Perfect night for heavy metal and classic rock! So glad we didn’t let MS keep us from this epic opportunity!

Instead of looking at all the negatives, we took off our MS-colored glasses and started to look at things in a positive light and said, “We’re in!”

One of the biggest things we’ve learned from living with MS is that you need to take advantage of the opportunities when you have them.

When were we ever going to have this chance to see two legendary heavy metal and rock groups this close to home with two of our most favorite people again?

You’re right: Probably never.

It. Was. AMAZING!

Sure, we didn’t get to sit next to the Steves, but how much do you actually get to talk to the person next to you at a heavy metal concert? Plus, we did get a chance to chat when crews did a set change between the two shows and again when the concerts were over and our hearing returned.

We didn’t let MS make the decision for us. We gave it a shot and took a chance on a concert at the casino.

The odds were in our favor, and we won this time.

Think MS will keep us from having fun? In the words of Judas Priest, “You’ve got another thing coming!”

 

Our online radio show: A Couple Takes on MS

What an opportunity Dan and I have been given. Not only are we living with Multiple Sclerosis — that’s how we found each other — but MS & Me Radio Network has found us and wants other people to hear more of our stories. And what’s really cool is the network wants to hear from…Continue Reading

A tough way to almost get to The Big Easy

To say Dan and I were looking forward to our trip to New Orleans to serve as the NMSS Louisiana Chapter’s On the Move Luncheon keynote speakers would be putting it mildly. After all, we’ve had a daily countdown written on our refrigerator for the 45 days leading up to our travels. 45… 44… and…Continue Reading

It’s just a cold, right?

It’s 40 degrees and raining on Monday. Then you wake up to sunshine and a crisp 18 degrees on Tuesday … just in time for 32 degrees and six inches of snow by the weekend. No wonder sniffles, sneezes and tissues take over our lives throughout the winter months. We’ve all been there, right? But…Continue Reading

Monday Evening Events with Cooper

Good evening, dear readers, Forgive my twelve hour lateness, but while Mumma and Dan were away this cat sure did play. Writing just wasn’t a priority when I had the whole house to myself. Yes, I enjoy being alone at times and yes, I hate being alone. And yes, I am a cat of contradictions.…Continue Reading

Accessible road trip tips

I recently was watching our friends’ 7-year-old daughter, Abby, and while we were drawing at Dan and my dining room table, our conversation went something like this: “So are you excited about Easter?” I asked. Distracted by the work of art she was creating, Abby muttered, “Uh-huh.” Trying to continue our lively discussion I inquired,…Continue Reading

Mr. and Mrs. Digmann go to Washington

Either our Multiple Sclerosis finally is starting to get to us or we really are getting old. Dan and I are leaning toward the latter (OUCH!). What else would explain how we have been back from Washington, D.C., for over three weeks and have not written about this incredible experience? The Michigan Chapter of the…Continue Reading