Category Archives: Resource

Experience a new kind of MS support (virtually speaking)

“We appreciate MS can change the challenges of even the simplest daily tasks … and we understand how it makes you feel  – physically and emotionally. Why? Because we are peers … we too live with MS and we understand it at the most basic level, Share your insight and commiserate with others who know.”

–AnCan MS Support Group website

People in the Multiple Sclerosis community occasionally are a little envious of Dan and me because, with us both having the disease, we have a built-in MS support group.

We just celebrated our 14th wedding anniversary on September 10. Wow! Fourteen years. We still are ridiculously happy together, and maybe it has something to do with the fact that we get direct support from someone who understands what it’s like to live with MS.

Knowing how important that kind of support is when you’re dealing with an unpredictable progressive disease makes us that much more excited about being a leading part of a new virtual MS support group.

At 8:30 p.m. EST Tuesday, Sept. 24, we will moderate with fellow MS advocate Carly Podzikowkski AnCan’s first non-cancer peer-led support group. People nationwide can join the group online (using audio and video camera) or call in using their phone.

Visit the AnCan MS Group website to learn how you can join the conversation.

The Answer Cancer Foundation re-branded as AnCan earlier this year because it is committed to serving more than just people living with cancer. Leaders of the organization recognized that its virtual group platform lends itself to many conditions, especially those that inhibit mobility.

As with all of the AnCan groups, the MS group is free and no pre-registration is required. Just one click or a telephone call, and people are speaking to their MS peers.

Dan and I know all too well how important peer-to-peer connections are when living with MS. After all, part of the reason we met each other nearly 17 years ago was because we each were self-help group leaders in our respective towns where we lived.

And it was through our dear friend and fellow MS blogger and advocate Mary Pettigrew that we were invited to serve as moderators for this incredible virtual MS support group through AnCan.

We’re excited about its first-ever meeting and are looking forward to seeing where it goes from here!  

Why Real Talk MS is THE real deal in MS podcasts

The massive amounts of Multiple Sclerosis information online can easily overwhelm anybody looking for the latest MS news. Each day, there are TONS of new MS data, facts and resources reported—everything from cutting-edge clinical trials to research trends, treatment options, advocacy opportunities, inspirational stories and more. So much important stuff, and we count our blessings…Continue Reading

Our online radio show: A Couple Takes on MS

What an opportunity Dan and I have been given. Not only are we living with Multiple Sclerosis — that’s how we found each other — but MS & Me Radio Network has found us and wants other people to hear more of our stories. And what’s really cool is the network wants to hear from…Continue Reading

Connecting MS to spring training

When I met Dan on September 28, 2002, I remember thinking that he was cute, charming and easy to talk to. He also had strong faith and understood the realities of life with Multiple Sclerosis. As my mom and I drove home from the Finding Your Buried Treasure program where we met earlier that day,…Continue Reading

Our virtual tour for MS Awareness Month ’17

March officially is MS Awareness Month! We’ve been pushing things out online and in-person to ensure our circles of friends get all the facts, perspectives and experiences to increase their understanding of this chronic progressive disease of the central nervous system. See how we effortlessly worked that fact about MS into our written conversation with…Continue Reading

It’s just a cold, right?

It’s 40 degrees and raining on Monday. Then you wake up to sunshine and a crisp 18 degrees on Tuesday … just in time for 32 degrees and six inches of snow by the weekend. No wonder sniffles, sneezes and tissues take over our lives throughout the winter months. We’ve all been there, right? But…Continue Reading

Odds and Ends

Merriam‑Webster defines “odds and ends” as, “miscellaneous articles or remnants.” This is a perfect title to capture all of the assorted bits I want to share on this chilly fall morning. First and foremost, Dan and I thank each and every one of you who shared kind thoughts and words consoling us after Cooper’s sudden…Continue Reading

Yvonne deSousa guest post

We couldn’t be more excited to introduce you all to our incredibly talented (and hilarious!) blogging friend Yvonne DeSousa! It truly is our pleasure to feature a guest post from her on our blog. We connected with Yvonne through Twitter, where we soon learned more about her blog (yvonndesousa.com) and her recently released book (“MS…Continue Reading