Mr. and Mrs. Digmann go to Washington

Either our Multiple Sclerosis finally is starting to get to us or we really are getting old. Dan and I are leaning toward the latter (OUCH!). What else would explain how we have been back from Washington, D.C., for over three weeks and have not written about this incredible experience? The Michigan Chapter of the National MS Society asked us to serve as the state’s delegates to the NMSS Public Policy Conference in Arlington, Va., and Washington, D.C., March 10-12. What an amazing time we had connecting with other MS activists from across the nation and making our voices...

What would you say?

Several weeks ago, our friends at Healthline reached out to us and asked if we would develop a video that helps those newly diagnosed with MS to adjust to life with the disease and reassure them that, “You’ve Got This.” Dan and I thought it was pretty empowering, and we liked that somebody wanted to know what WE had to say. But we didn’t realize until after it was posted that our 90-second video was part of such a huge campaign between Healthline and the National Multiple Sclerosis Society. According to Healthline, “‘You’ve Got This is an opportunity for...

Mannequins and Disability

Mannequins and disability. Who would think of such a strange combination? And who would want to see images like those? After all disability is different and strange, maybe even a little scary. That differentness may explain why I would never expect to see images of the disabled as mannequins used in storefront windows. But that all changed when Dan sent me a link he saw on Facebook. It was to an article about how some physically disabled figures quickly became the center of attention late last year. The Internet and social media were abuzz telling the story and showing a...

Let’s get political

Looking back on your past year (it’s standard protocol for any New Year’s Eve and New Year’s Day, right?), what events stand out as your highlights? Perhaps it was achieving a long-time goal such as losing weight, running your first 5K, quitting smoking or completing a house remodeling project. Or, maybe it was the vacation you took. The wedding you celebrated. The new family member you welcomed into the world. Each top moment you’re remembering was all kinds of special. As Jennifer and I reflected on our 2013 to get plans and resolutions in order for 2014, we...

An MS caregiver’s cry revisited: T...

As I sat out in the living room reading my book for graduate school, I heard Jennifer back in the bedroom crying in pain. The damn trigeminal neuralgia had woken her from her nap. It’s the sharp nerve pain for which she just wrote about in a guest post on MSlisaSAYS that appeared later in the afternoon. I went back to comfort my pain-stricken wife, known that my presence was the only thing I could provide for this situation. Like Jennifer, I too felt totally helpless. And so, all could do is kneel at her bedside, hold her hand, and curse the disease for being so...

39

Hope everyone had a very Happy Thanksgiving! As the shopping season, or should that say Christmas season, begins today I thought this link would give you some great gift buying suggestions for anyone in your life, whether or not the person you are shopping for has Multiple Sclerosis. Happy gift hunting  Speaking of gifts, I cannot believe I didn’t mention my turning 39 a little more than three weeks ago. Hard to believe it has been four years since I wrote one of my favorite blogs: 35. In it I was stressing about turning 35 and now, with my turning 40 in less than a...

My anniversary and MS community

Thursday, November 14, was my anniversary. But there were no cards or cake. I didn’t toast the day with a glass of champagne or by getting a bright, shiny new manicure. Instead, I cancelled my nail appointment and sat at home coughing and blowing my nose. I was sick with a cold and that spoiled my day. I had planned to celebrate that day because sixteen years ago, my then-neurologist said those unforgettable words, “You have Multiple Sclerosis.” And from then on, this damn disease always has been with me. I celebrate MS’s unwelcome invasion of my life and try not...

MS, Disability and Mickey Mouse

It’s a world of laughter, a world of tears It’s a world of hopes and a world of fears There’s so much that we share that it’s time we’re aware It’s a small world after all Be honest, how long did it take before you joined in singing this Disney classic? It’s infectious and I have always cherished my memories of the trips I’ve taken my parents and brother to Walt Disney World. Yes, most of these trips were taken when I was a child; i.e. before my life with Multiple Sclerosis began. Following my diagnosis, I still was able to enjoy...