Tag Archives: frustrations

Itching the night away

In spite of our shared battles with Multiple Sclerosis, Dan and I have been happily married for the past 13 years.

Strangely, the disease has brought us together. That closeness has sometimes even let us communicate without talking. No words needed.

We have our regular rituals like sharing a quick kiss as soon as an empty elevator’s door closes. Or grasping the other’s hand as we say the Lord’s prayer at church. We toast utensils at the beginning of every meal.

And as the day winds down—usually around 10 p.m.—I bow my head down to Dan, and he knows exactly what I need. Without hesitation he furiously and vigorously scratches my scalp.

No, I do not have bugs.

Or a severe case of dandruff.

And the itching cannot be attributed to my regular hair appointments either. My stylist, Rachelle, at Salon 3Twelve diligently washes and rinses any trace of hair color solution from my scalp. So, getting rid of my grays isn’t the culprit.

So what gives? This itching is maddening!!

Recently as Dan was checking his email (or, more likely, his fantasy football lineup), he came across this informative video he knew I needed to see.

Alas, there IS a reason for my itching. I’m NOT imagining this incessant evening irritation!

What makes this video even more comforting and credible for me is that it comes from Dr. Aaron Boster. Not only is he a highly respected board-certified clinical neuroimmunologist specializing in MS at OhioHealthI was one of his patients when he completed his internship and neurology residency at the University of Michigan. I can attest that he is very passionate and very thorough in taking care of his patients.

In these videos, you’ll see how Dr. Boster is providing so much help and comfort for countless others, like Dan and me, who are living with the daily challenges of MS.

Turns out this itching is a real MS symptom.

Real, but rare.

How’d I get so lucky?

Winter is coming: MS preparations for when it’s here

Talk to people about their Multiple Sclerosis symptoms, and many are quick to come forward with sensitivity to the heat. Jennifer and I get it. We also are weakened most times the temperature tops 80.3 degrees, give or take a few depending on weather wildcards like direct sunshine and hovering humidity. Summer heatwaves are so…Continue Reading

Get inspired to overcome MS-related frustrations

Getting upset seems like it happens several times each day when you’re living with Multiple Sclerosis. Common occurrences include dropping your phone because your numb hands can’t feel it. Missing a social event because you know the freshly fallen snow will compromise your balance. Getting to the bathroom two seconds too late. Frustrations happen. So…Continue Reading

ADA family restrooms? Be like Detroit Metro Airport

Dan and I thought we had it made in Nashville. Flying home from our recent trip, there was a family restroom at the Nashville International Airport. And it even was marked as being handicapped accessible. We quickly learned that not all family restrooms are created equal. I mean, we appreciated the efforts of the Nashville…Continue Reading

A tough way to almost get to The Big Easy

To say Dan and I were looking forward to our trip to New Orleans to serve as the NMSS Louisiana Chapter’s On the Move Luncheon keynote speakers would be putting it mildly. After all, we’ve had a daily countdown written on our refrigerator for the 45 days leading up to our travels. 45… 44… and…Continue Reading

Speaking of Dan’s workplace accommodation

It wasn’t supposed to come to this: Me, asking for a workplace accommodation because of my Multiple Sclerosis. I was invincible for more than 17 years as the assistant director of publications at Central Michigan University. I even had an office on the second floor and never once flinched at repeatedly climbing two flights of…Continue Reading

It’s just a cold, right?

It’s 40 degrees and raining on Monday. Then you wake up to sunshine and a crisp 18 degrees on Tuesday … just in time for 32 degrees and six inches of snow by the weekend. No wonder sniffles, sneezes and tissues take over our lives throughout the winter months. We’ve all been there, right? But…Continue Reading

Whether to go, weather we’ll stay

My initial thought when the National Weather Service issued a winter storm watch was that it was much ado about nothing. The posted watch predicted everything shy of hellfire and brimstone the very day Jennifer and I were set to traverse three hours to Ford Field in Detroit and watch our beloved CMU Chippewas battle…Continue Reading