Sometimes I wonder if people living with MS are truly empathetic toward the people who share their same diagnosis. Seriously. So often I read rants from fellow MSers who condemn critical people who don’t have the disease because they, “ . . . don’t understand what I have to live with because I have an…… Continue Reading
Catch the Digmanns in the news
Tag Archives: frustrations
Meagan Freeman guest post
We are grateful to feature a guest post from Meagan Freeman, RN, FNP-BC. Meagan is a Nurse Practitioner and mother living with Multiple Sclerosis. We encourage you to read more of her writing at Motherhood, and Other Traumatic Experiences. Metamorphosis All is temporary, including darkness. Butterflies are a wonderful example of this. Look at these…… Continue Reading
We've been busy bloggers
OK, so we haven’t posted here since Dec. 28 of last year, but that doesn’t mean we haven’t been writing essays about our lives and moving forward with MS. We’ve had opportunities to share our stories on some incredible MS-related blogs these past few weeks, and we’re excited to share them with you here. We…… Continue Reading
Yvonne deSousa guest post
We couldn’t be more excited to introduce you all to our incredibly talented (and hilarious!) blogging friend Yvonne DeSousa! It truly is our pleasure to feature a guest post from her on our blog. We connected with Yvonne through Twitter, where we soon learned more about her blog (yvonndesousa.com) and her recently released book (“MS…… Continue Reading
An MS caregiver's cry revisited: Take me
As I sat out in the living room reading my book for graduate school, I heard Jennifer back in the bedroom crying in pain. The damn trigeminal neuralgia had woken her from her nap. It’s the sharp nerve pain for which she just wrote about in a guest post on MSlisaSAYS that appeared later in…… Continue Reading
The Blame Game
As I was reading at the dining room table, I heard a car and then my husband’s voice. “Strange,” I thought. “Maybe Dan ran into someone he knew while he was out on his run.” So I kept reading, only to be horrified when I saw Dan walk in the front door. His right eye…… Continue Reading
I've been thinking…
I spent a large part of my summer thinking and learning about disability. Sounds silly right? After all, I shouldn’t need to learn about disability since I live it—having relied on a wheelchair for the last ten years, but now I see disability differently. I better understand the societal, financial, and political realities of having…… Continue Reading
Not today
I think I don’t want to have MS today. I don’t want to take my injection today, because really, are you sure it is anything more than glorified water? And I’m tired of asking for help all of the time. “Will you help me in the bathroom?” or “Will you drive me to the store?”…… Continue Reading
Tick tock
Can you hear that? Maybe it is one of the clocks in our front room. Tick tock, tick tock. Nope, that’s not it. Tick tock… there it goes again. Only faster now – more like the stopwatch from the television show 60 Minutes. Less tick tock, more tick-tick-tick. I wonder to myself, “Hmm… where is that…… Continue Reading
Foreshadowing
Foreshadowing – the organization and presentation of events and scenes in a work of fiction or drama so that the reader or observer is prepared to some degree for what occurs later in the work. Did you celebrate World MS Day on May 25? When I think back on my past life, I really wouldn’t…… Continue Reading