Tag Archives: Friendship

MS resilience in and beyond the Super Bowl

My dad always has told me that, “If you want to hoot with the owls at night, you better be able to soar with the eagles at dawn.” And after a late night hooting for the New England Patriots stunning comeback win in Super Bowl LI, I am trying to soar this morning. Slowly, I am getting off of the ground. Soaring might require a cup of coffee and a shower, but Dan and I enjoyed watching a great football game. We were having fun, not thinking about work or dishes or laundry or Multiple Sclerosis.

Just a few hours focused on football and fun.

After all, Multiple Sclerosis is a challenging disease to live with. Whether you are living with MS in your body, or if it is living with you in the body of a spouse, partner, child or friend, you are living with a complex, mysterious monster.

So how are you handling it? Do you think about  the disease all of the time? Is a cure or the effects of MS progression always at the forefront of your thoughts? Or are you able to think about the monster only when necessary, like at shot time and at yearly visits with the neurologist? And do you reach out to others for help and support?

Reality is you have to handle it one way or another, it is your choice. But a new study has shown that in people with chronic disease, like MS, resilience is linked to social satisfaction and quality of life – not physical function. I haven’t walked in nearly 15 years and need to use a wheelchair for my mobility and get from place to place. But I haven’t stopped. I’m soaring, despite my disease.

Resilience is the ability to solve problems, handle adversity and bounce back from difficult situations. It helps create a mindset of growth and opportunities, of seeing obstacles as challenges rather than threats. Kind of like when an football team comes back from a 28-3 deficit only to win the game in overtime, that’s resilience.

We strive for resilience, but we also have to be responsible. Like last night, we chose to decline an offer to attend a Super Bowl party at our friends’ townhouse. Sure, we can get into their place with my wheelchair, but we realized we needed to conserve our energy. When we both are tired, our quality of life and enjoyment of it suffers. Besides, we need to be at our best for our trip to Baton Rouge on Tuesday to present at the NMSS Louisiana Chapter’s On the Move Luncheon.

Understanding the factors that promote resilience may help people with MS to not only cope with unpredictable changes in health and abilities, but to thrive in spite of these changes. To learn more about how the resilience factor can help you to thrive, and watch an education program on Resilience: Addressing the Challenges of MS click on either link.

We hope that learning to become more resilient will help you to soar with the eagles, or at the very least better appreciate quality social time and a good football game 😉

Odds and Ends

Merriam‑Webster defines “odds and ends” as, “miscellaneous articles or remnants.” This is a perfect title to capture all of the assorted bits I want to share on this chilly fall morning. First and foremost, Dan and I thank each and every one of you who shared kind thoughts and words consoling us after Cooper’s sudden…Continue Reading

Maintaining a social life and ADA accommodations

We felt bad and apologized when we asked other people to take care of things we have do each time we attend a public event. Welcome, friends. Our life can be such an inconvenience. Not that the people patiently handling our requests weren’t fully willing to help us. We just regretted having to ask them…Continue Reading

Happy New Year

A good friend recently e-mailed me this Handbook for 2011. Because it inspired me, I wanted to share some of it – along with a few additions from me, of course 🙂 My thoughts are in italics. 1.       Drink plenty of water. Yes, that is tough with MS, but we should try.…Continue Reading

A good pair of black pants

Whether you are male or female, you probably have heard about the all-important “little black dress,” well for me, an outfit starts with “a good pair of black pants.” It has been a little over eight years since I’ve driven a car. Hate that, but I accept it. Been almost that long since I’ve walked. Yep,…Continue Reading