Category Archives: Daily Life

A Valentine’s Day Wedding Dance… 13 years in the Making

There’s something that always has bothered me about Dan and my wedding day. He never danced with me to our wedding song on September 10, 2005. It’s not that Dan didn’t want to. It’s just that I wasn’t able to stand with him for the 2 minutes and 38 seconds it takes for Bruce Springsteen…Continue Reading

When the MS caregiver gets sick

One of the biggest things Jennifer and I fear with us both living with Multiple Sclerosis was recently realized. I got out of bed and couldn’t stand up to walk. Me, Jennifer’s primary caregiver who is the physical force behind her every transfer in and out of her power wheelchair, lost control of my legs,…Continue Reading

With MS and life, ‘perseverance’ is my 2019 word of the year

I was talking with my brother, Steve, the other day as Dan finished his workday. Beyond the New Year’s Eve party analyses that highlight Steve and my first conversation of each new year, he hit me with something before I even asked him. He asked me if I had made any New Year’s resolutions, and…Continue Reading

Our defining moments of the year, despite MS

Perhaps you’ve read essays from us about how we are huge proponents of making New Year’s resolutions. These are the goals and ideas we set for ourselves to make positive changes and improvements in our lives. But before we look ahead and write down what we hope to accomplish in 2019, we’ve found it’s worth…Continue Reading

Join us for a live MS caregiving chat tonight!

Multiple Sclerosis can be a very isolating disease, but there are so many ways to keep us all connected. We have worked to maintain these connections through our blogging and speaking and using technology like Healthline’s MS Buddy app. Through this free app, we have a virtual self-help group at our fingertips. Whether you, or…Continue Reading

Take time to give thanks for Caregivers

Our kitchen counter is filled with foundations for two Thanksgiving side dish staples: green bean casserole and scalloped corn. Don’t get us wrong, turkey is the main attraction, but in our minds the sides always have the starring role in this annual tradition. Come Thanksgiving morning, we’ll wake up early and prepare three pans of…Continue Reading

Why telling others your MS story is good for you

Sharing your Multiple Sclerosis stories is a key component to self-care. I often say that I’m going to keep talking about Multiple Sclerosis so much that people will cure the disease just to shut me up. But they haven’t cured it yet, so I’m still talking. Dan and I recently had the opportunity to speak…Continue Reading

Winter is coming: MS preparations for when it’s here

Talk to people about their Multiple Sclerosis symptoms, and many are quick to come forward with sensitivity to the heat. Jennifer and I get it. We also are weakened most times the temperature tops 80.3 degrees, give or take a few depending on weather wildcards like direct sunshine and hovering humidity. Summer heatwaves are so…Continue Reading