Category Archives: Daily Life

Musical birthday memories

“In Xanadu, did Kubla Khan a stately pleasure dome decree…” So sayeth Olivia Newton-John in one of my all-time favorite movies: Xanadu. I love this 1980 film that was billed as, “A Fantasy, A Musical, A Place Where Dreams Come True.” I love its music, storyline, the roller-skating, and its abundant cheesiness. And I love…Continue Reading

I've been thinking…

I spent a large part of my summer thinking and learning about disability. Sounds silly right? After all, I shouldn’t need to learn about disability since I live it—having relied on a wheelchair for the last ten years, but now I see disability differently. I better understand the societal, financial, and political realities of having…Continue Reading

MS be damned

I never saw the concrete coming, but it came quite quickly. Right up to my right eye as my head slammed into the sidewalk. Again. I fell when I was out running last week. I think my left leg, true to its traditionally sporadic toe-drag form, clipped a sidewalk crack about two miles into my…Continue Reading

Live Fully, Fight Back and Find Hope

Teaming up with the Jenkins Group in Traverse City, Mich., we launched our first nationwide campaign promoting our book, “Despite MS, to Spite MS.” The company worked with us to develop a targeted news release and this week distributed it to nearly 2,400 media outlets nationwide, including magazines, newspapers, websites and radio and television programs.…Continue Reading