Tag Archives: Advocacy

Our online radio show: A Couple Takes on MS

What an opportunity Dan and I have been given. Not only are we living with Multiple Sclerosis — that’s how we found each other — but MS & Me Radio Network has found us and wants other people to hear more of our stories.

And what’s really cool is the network wants to hear from a bunch other interesting people within the MS community.

It all starts with the premier launch of the MS & Me Radio Network on Sunday, August 13.

Our show, A Couple Takes on MS, is among the original network programs to connect with and serve the global community via streaming audio media.

We’re pretty proud of the double meaning we came up with for the name of our show. Do you get it?

Of course we’re a married couple taking on this disease together, but we each have our own take on living with Multiple Sclerosis. After all, Dan is a man living with relapsing-remitting MS, and I am a woman living with secondary-progressive MS. He’s walkin’, I’m rollin’. And though any situation we’re facing, we have firsthand experience seeing from the perspective of someone living with MS and from the perspective of a caregiver.

Boom! A Couple Takes on MS 🙂

We already have three shows recorded that address topics of MS and Independence, MS Resources, and The Empowerment of MS Advocacy. And all shows feature the funky and fresh theme music produced by Blue Giraffe Kid (our heartfelt thanks to Kieran in Indianapolis)! For a sneak peek, check out the initial airing of our first show, Independence Day.

Dan and I want our shows, much like our blog, to connect with and empower other people to rise above the challenges they’re facing and know they’re not facing them alone. The shows will meet people wherever they are on their journeys and, let’s be honest folks, Dan and I hope to make our listeners smile every now and again.

And if you want variety, there’s a whole lineup of shows and hosts to make the MS & Me Radio Network a meaningful outlet for patients, families, caregivers, clinicians, researchers and healthcare professionals.It’s the first MS-only 24 hours a day, 7 days a week dedicated streaming network created for the MS community.

Yes, we are excited. Yes, we hope you listen. And absolutely we want to hear from you! Please check out the station, see when you can listen to us or check out the recorded programs that will be available for you to listen to online, anytime!



Our virtual tour for MS Awareness Month ’17

March officially is MS Awareness Month! We’ve been pushing things out online and in-person to ensure our circles of friends get all the facts, perspectives and experiences to increase their understanding of this chronic progressive disease of the central nervous system. See how we effortlessly worked that fact about MS into our written conversation with…Continue Reading

Discovering power in MS advocacy

Multiple Sclerosis possesses weapons that should make Dan and me feel powerless. Striking us with extreme fatigue. Weakening our limbs with constant numbness. Robbing me of my ability to walk. Powerless. But that’s not how we’ve rolled, both literally and figuratively, in our 10 years of marriage. Dan and I have lived to redefine what…Continue Reading

Maintaining a social life and ADA accommodations

We felt bad and apologized when we asked other people to take care of things we have do each time we attend a public event. Welcome, friends. Our life can be such an inconvenience. Not that the people patiently handling our requests weren’t fully willing to help us. We just regretted having to ask them…Continue Reading

Monday Evening Events with Cooper

Good evening, dear readers, Forgive my twelve hour lateness, but while Mumma and Dan were away this cat sure did play. Writing just wasn’t a priority when I had the whole house to myself. Yes, I enjoy being alone at times and yes, I hate being alone. And yes, I am a cat of contradictions.…Continue Reading

In front of Pharma in Philadelphia

In a less-than-silent protest Cooper is not posting his Monday morning blog this week. He’s extremely upset with Jennifer and me and made this known the second we got home late Thursday night. I kid you not: Cooper ripped off a litany of what I could only interpret as foul-mouthed meows to scold us for…Continue Reading

Mr. and Mrs. Digmann go to Washington

Either our Multiple Sclerosis finally is starting to get to us or we really are getting old. Dan and I are leaning toward the latter (OUCH!). What else would explain how we have been back from Washington, D.C., for over three weeks and have not written about this incredible experience? The Michigan Chapter of the…Continue Reading

Let’s get political

Looking back on your past year (it’s standard protocol for any New Year’s Eve and New Year’s Day, right?), what events stand out as your highlights? Perhaps it was achieving a long-time goal such as losing weight, running your first 5K, quitting smoking or completing a house remodeling project. Or, maybe it was the vacation…Continue Reading