Tag Archives: Advocacy

Our virtual tour for MS Awareness Month ’17

March officially is MS Awareness Month! We’ve been pushing things out online and in-person to ensure our circles of friends get all the facts, perspectives and experiences to increase their understanding of this chronic progressive disease of the central nervous system.

See how we effortlessly worked that fact about MS into our written conversation with you? It’s all about awareness.

We could argue that every day, every week and every month of every year deals with MS awareness. Indeed, we always are aware that we have MS.

Not that this necessarily is a bad thing, right? We often use essays on this blog to point out the positive sides or different ways of thinking to move forward despite this stupid disease that is at least two to three times more common in women than in men.

OK, so we’ll stop working the facts into the conversation and instead ask you to go on a virtual tour of sorts with us here.

For MS Awareness Month, the MS support group we co-lead secured an exhibit case at the Alma Public Library to get the orange out and make library patrons more aware that this complex disease is more than just a simple acronym. Obviously you can’t all make it to the library in Alma, Michigan, so we’ll bring it to you on our blog.

Enjoy!

Here’s how the exhibit case looks as you enter the library. Big THANKS to Jennifer’s caregiver Crystal for her artistic exhibit installation skills!

And now, after the exhibit has caught your eyes and you’ve paused for a moment, take a closer look at the information presented in the slides:

And now, for a bonus feature not available in the library exhibit, check out this phenomenal video from the National Multiple Sclerosis Society that further explains MS.

Discovering power in MS advocacy

Multiple Sclerosis possesses weapons that should make Dan and me feel powerless. Striking us with extreme fatigue. Weakening our limbs with constant numbness. Robbing me of my ability to walk. Powerless. But that’s not how we’ve rolled, both literally and figuratively, in our 10 years of marriage. Dan and I have lived to redefine what…Continue Reading

Maintaining a social life and ADA accommodations

We felt bad and apologized when we asked other people to take care of things we have do each time we attend a public event. Welcome, friends. Our life can be such an inconvenience. Not that the people patiently handling our requests weren’t fully willing to help us. We just regretted having to ask them…Continue Reading

Monday Evening Events with Cooper

Good evening, dear readers, Forgive my twelve hour lateness, but while Mumma and Dan were away this cat sure did play. Writing just wasn’t a priority when I had the whole house to myself. Yes, I enjoy being alone at times and yes, I hate being alone. And yes, I am a cat of contradictions.…Continue Reading

In front of Pharma in Philadelphia

In a less-than-silent protest Cooper is not posting his Monday morning blog this week. He’s extremely upset with Jennifer and me and made this known the second we got home late Thursday night. I kid you not: Cooper ripped off a litany of what I could only interpret as foul-mouthed meows to scold us for…Continue Reading

Mr. and Mrs. Digmann go to Washington

Either our Multiple Sclerosis finally is starting to get to us or we really are getting old. Dan and I are leaning toward the latter (OUCH!). What else would explain how we have been back from Washington, D.C., for over three weeks and have not written about this incredible experience? The Michigan Chapter of the…Continue Reading

Let’s get political

Looking back on your past year (it’s standard protocol for any New Year’s Eve and New Year’s Day, right?), what events stand out as your highlights? Perhaps it was achieving a long-time goal such as losing weight, running your first 5K, quitting smoking or completing a house remodeling project. Or, maybe it was the vacation…Continue Reading

You're invited!

National Multiple Sclerosis Awareness Week is March 12-18, and we have an incredible opportunity to increase people’s understanding of this chronic disease of the central nervous system. Central Michigan University’s Clarke Historical Library has invited us to present as part of its annual Speaker Series, and our event is set for 7 p.m. Thursday, March…Continue Reading