MS and the wrong thing to say

Sometimes I wonder if people living with MS are truly empathetic toward the people who share their same diagnosis. Seriously. So often I read rants from fellow MSers who condemn critical people who don’t have the disease because they,  “ . . . don’t understand what I have to live with because I have an invisible illness.” They hate it when friends, family members and strangers throw out comments such as, “But you look so good,” “Maybe if you went on a gluten free diet,” or “I think it’s all in your head, and you’re just making up excuses.”  As...

Seeing all sorts of orange

As National MS Awareness Week comes to a close today, Dan and I are reflecting on the some of the highlights of the past seven days that will provide momentum for us — and you as well! — to keep celebrating March as MS Awareness Month. I’ve been told a picture is worth a thousand words. Without further ado, here are photos to tell you all about the last week that was flooded with orange, the official color of MS. In honor of MS Awareness Month this month, Healthline is running a social media campaign called #HugsForMS to raise awareness and funds for MS research. All...

Fighting MS with ATO

I didn’t know what to say when the Alpha Tau Omega fraternity brother stretched out his arm to shake my hand and tell Dan and me that, “It’s an honor to meet you both and hear your story. Thank you.” Um, Wow! These words touched me so deeply. And the reality is Dan and I are the ones who were honored by the invitation to participate in the event to kickoff this unbelievable Spring Break journey the ATO brothers at Grand Valley State University are taking this week. If you’re wondering what is so unbelievable about their journey, I’ll let the bullet points from...

Meagan Freeman guest post

We are grateful to feature a guest post from Meagan Freeman, RN, FNP-BC. Meagan is a Nurse Practitioner and mother living with Multiple Sclerosis. We encourage you to read more of her writing at Motherhood, and Other Traumatic Experiences. Metamorphosis All is temporary, including darkness. Butterflies are a wonderful example of this. Look at these incredibly beautiful creatures, fluttering and dancing on flowers like living magical fairies from some other world. These are some of the most graceful, elegant creatures on Earth, but they did not start out this way, did...

We’ve been busy bloggers

OK, so we haven’t posted here since Dec. 28 of last year, but that doesn’t mean we haven’t been writing essays about our lives and moving forward with MS. We’ve had opportunities to share our stories on some incredible MS-related blogs these past few weeks, and we’re excited to share them with you here. We hope you have a few minutes to read these guest essays posted on “Modern Day MS” and “Multiple Sclerosis, Motherhood, and Other Traumatic Experiences.” It is an honor to have our writing featured on both these blogs...