MS and the wrong thing to say

Sometimes I wonder if people living with MS are truly empathetic toward the people who share their same diagnosis. Seriously. So often I read rants from fellow MSers who condemn critical people who don’t have the disease because they,  “ . . . don’t understand what I have to live with because I have an invisible illness.” They hate it when friends, family members and strangers throw out comments such as, “But you look so good,” “Maybe if you went on a gluten free diet,” or “I think it’s all in your head, and you’re just making up excuses.”  As...

Meagan Freeman guest post

We are grateful to feature a guest post from Meagan Freeman, RN, FNP-BC. Meagan is a Nurse Practitioner and mother living with Multiple Sclerosis. We encourage you to read more of her writing at Motherhood, and Other Traumatic Experiences. Metamorphosis All is temporary, including darkness. Butterflies are a wonderful example of this. Look at these incredibly beautiful creatures, fluttering and dancing on flowers like living magical fairies from some other world. These are some of the most graceful, elegant creatures on Earth, but they did not start out this way, did...

We’ve been busy bloggers

OK, so we haven’t posted here since Dec. 28 of last year, but that doesn’t mean we haven’t been writing essays about our lives and moving forward with MS. We’ve had opportunities to share our stories on some incredible MS-related blogs these past few weeks, and we’re excited to share them with you here. We hope you have a few minutes to read these guest essays posted on “Modern Day MS” and “Multiple Sclerosis, Motherhood, and Other Traumatic Experiences.” It is an honor to have our writing featured on both these blogs...

Yvonne deSousa guest post

We couldn’t be more excited to introduce you all to our incredibly talented (and hilarious!) blogging friend Yvonne DeSousa! It truly is our pleasure to feature a guest post from her on our blog. We connected with Yvonne through Twitter, where we soon learned more about her blog (yvonndesousa.com) and her recently released book (“MS Madness! A ‘Giggle More, Cry Less Story of Multiple Sclerosis’”). Such great writing and we encourage you all to check them out soon!  Thank you, Yvonne, and to our readers: Get ready to giggle and learn more about one of the many...

An MS caregiver’s cry revisited: T...

As I sat out in the living room reading my book for graduate school, I heard Jennifer back in the bedroom crying in pain. The damn trigeminal neuralgia had woken her from her nap. It’s the sharp nerve pain for which she just wrote about in a guest post on MSlisaSAYS that appeared later in the afternoon. I went back to comfort my pain-stricken wife, known that my presence was the only thing I could provide for this situation. Like Jennifer, I too felt totally helpless. And so, all could do is kneel at her bedside, hold her hand, and curse the disease for being so...