The Fighting Shamrocks: Rebecca’s story...

When Jennifer and I arrived at the Bike MS event in East Lansing, Mich., we were humbled after a woman approached us to say how much our book and our presentation at the NMSS Michigan Chapter annual meeting a few years ago meant to her. Little did we know she soon would blow us away with a presentation of her own. Rebecca Kuchar was a featured speaker at the Bike MS reception that night, leaving most of us in tears with her story and inspiring us to do more to support the more than 400,000 Americans living with this disease. We are so excited and appreciative that Rebecca...

A top story at 6

We encountered some surreal sorts of moments as the nation celebrated MS Awareness Week March 11-17. As part of this celebration Jennifer and I spent all day Thursday at Central Montcalm High School in Stanton, Mich., sharing our stories with six different classes of students. High school English teacher and our friend, Theresa, had invited us to speak as guest authors after most of her students were assigned to read “Let me tell you about … Becoming the Bat Man” – an essay from our book, “Despite MS, to Spite MS,” – as part of their nonfiction writing...

Mind if we play through?

I enjoy that even with the challenges Jennifer and I face in living with MS, every day life is everyday life. The effects of these challenges  – including everything from her inability to walk to my constantly numb hands and feet – merely are par for our courses of this disease. It’s as though we are looking right at MS and asking, “Mind if we play through?” But we never stop to see if it’s granting us permission. We just tee it up and drive ourselves down the next fairway of our life together. Sure, there are plenty of sand traps, trees, doglegs,...

Our MS story on Sirius XM

We’re so ecstatic that our Detroit Tigers beat the New York Yankees in the American League Championship Series! In addition to the fact that the Tigers swept the Bronx Bombers to secure their spot in the World Series, their quick ALCS win gave us this weekend to prepare for (and freak out about) one of our biggest interviews ever. How big? I think Jennifer’s recent Facebook post said it best: “Dan Digmann explained this much more eloquently, but all I have to say is, ‘Holy Crap, we’ll be sharing our story about living with MS on XM Radio Monday...

I’ve been thinking…

I spent a large part of my summer thinking and learning about disability. Sounds silly right? After all, I shouldn’t need to learn about disability since I live it—having relied on a wheelchair for the last ten years, but now I see disability differently. I better understand the societal, financial, and political realities of having a disability. Plus, I know that there is more to disability than not being able to walk. Disability includes many other deficits, be that hearing, vision, or cognition. And I realize this not only because of my graduate classes at CMU...